"Time is a great healer, and it's also a great motivator. Use it wisely to break through the barriers that stand in your way."
Author: Vinit Shetty
Editor: Vrindashree Kumar
Illustrator: Vibha G Rao
Contributors: Vasanthi Shetty, Sudhakar Shetty, Jayanthi Hegde, Nishi Mamthora
Hey there! Welcome to my blog page, where I'll be sharing all the ups and downs I've encountered on this wild ride called LIFE! I am reminded of a timeless quote by Lao Tzu, "A journey of a thousand miles begins with a single step." Diving into my own experiences, we, as a part of the 369 Ochre Studio, are embarking on the first step toward discussing accessibility. With every passing day, you have the opportunity to rewrite your story and overcome the barriers that stand in your way. So, get ready to join me on this exciting journey!
You know, every single person in this vast world has their own unique personality. Just like fingerprints, no two people have identical identities. Each and every one of us is special in our own way. As a little boy, I was a mischievous bundle of energy, always keeping everyone on their toes. But don't let those innocent-looking photographs fool you! My siblings, bless their hearts, used to say, "Don't judge the book by the cover!" They knew there was more to me than met the eye.
Ah, childhood... It truly is the most delightful phase of life, isn't it? Those carefree, innocent, pampered, and loved moments are some of the most precious memories we carry with us. They're the ones we miss the most as we grow older. I have a treasure trove of memories from my childhood—playing to my heart's content, getting into all sorts of mischief, and just embracing the joy of being alive.
Speaking of which, I was born as a healthy baby in Mumbai back in 1978. I received all the necessary vaccines and doses during my childhood to keep me in good health. But for now, let's dive into the turning point. In 1990, my uncle, who happened to be a doctor, noticed some abnormalities in my legs. And that's when the whirlwind of doctor visits and hospital trips began. We were on a quest for answers, determined to unravel the mysteries behind those symptoms. After a thorough investigation, I was diagnosed with Sensory Motor Neuropathy—a type of motor neuron disease. I recall experiencing a few of these symptoms at a young age.
**Sensory motor neuropathy is a condition that affects the peripheral nerves, causing a combination of sensory symptoms (numbness) and motor symptoms (muscle weakness, coordination difficulties).
This blog isn't just about me, though. It's about shedding light on the importance of accessibility. Together, we'll explore the significance of inclusivity, break down barriers, and advocate for a world that's accessible to all. Life's journey is filled with twists and turns, but by sharing our experiences, we can make it a little bit easier for one another.
Trust me, there's a lot more to come, make sure to stay tuned for future blog posts, where I'll delve deeper into my story and share the valuable lessons I've learned along the way. Together, let's embark on this adventure and create a more inclusive society—one step at a time.
Deeply touched and so happy to see you opening up@Vinit Shetty.Behind a smile one often hides emotions tht stay unexpressed and unnoticed.Speaking out is not only freeing, its so so inspiring and creates a ripple effect of positivity and inclusivity.Kudos to you and ur team fr bringing this on..let ur thoughts flow!! God bless.
That’s such a great start dear! So proud of how bravely you are facing life’s challenges….hang in there and keep the blogs coming! Blessings to you.
You rock Boxy …. Your childhood pics are 👌😘🧿
So glad you are finally putting words and educating everyone on what you are going through
Great initiative @Vinit Shetty Inclusivity is when everyone can bring their unique selves to contribute meaningfully without any fear of judgment. It is very important to address the issue head-on and talk openly.